We greatly appreciate our readers who submit questions. We try and select questions that are asked by multiple readers. While we don’t dispense medical care on this site, we do strive to educate and empower our readers. Can Patients with Pulmonary Arterial Hypertension Go Boating? PAH is a lifelong disease that comes with much baggage such as … [Read more...]
2019 Update on Implanted Pump for Remodulin
Although the progress of the implanted pump system for Remodulin has been a little like watching paint dry on the wall, we are inching closer to having this new system available for patients. The clinical trial is now well into its eighth year. The FDA has approved the pump and the catheter system. United Therapeutics and Medtronic (the two companies that make the medication … [Read more...]
Copay Assistance from PAN Foundation Now Open
The PAN Foundation announced that they have funds to help patients. They have grants available for up to $5,300. You may call them at 866-316-7263 or apply online at https://www.panapply.org/ Funds are likely to be in high demand so apply immediately and expect busy phone lines. We expect other foundations to announce new funding soon. Stay tuned. Here is the … [Read more...]
Copay Assistance Fund Now Open
In the ever-shifting landscape for copay assistance you have to have patience and perseverance. Yesterday the Copay Assistance Fund announced that they have money to give away to help PAH patients afford their medication. You can click here to apply. Or you may call 855-649-8623. There are also other phone numbers located on their site here. The Assistance Fund is an … [Read more...]
V-Wave: A New Device is Being Studied to Treat PAH
The PAH community is fortunate to have many treatment options. 14 medications are approved and probably more coming. But for some patients, medications are not enough. We have long recognized that patients with congenital heart disease (abnormal communications in their heart) who have PAH have a much better prognosis. What is Atrial Septostomy? In certain parts of the … [Read more...]
