Latest from Our Blog

Sickle Cell and Pulmonary Hypertension

What is Sickle Cell Disease? Sickle Cell Disease is a genetic disorder of the red blood cells. It is autosomal recessive (you need to get one defective gene copy from each of your parents). Patients with sickle cell disease have abnormal hemoglobin in their red cells. Under periods of stress the red cells become deformed […]

What Is Personalized Medicine?

If you watch the evening news or read the newspaper then there is a good chance that you have heard the term Personalized Medicine.  The most common area where we hear about this is in reference to cancer treatments.  But what does it mean? When your doctor makes a diagnosis, and reaches for a treatment, […]

My PAH Comprehensive Care Center Is Too Far Away

PAH Comprehensive Care Centers are a great place to get care for pulmonary arterial hypertension for several reasons. They have providers specially trained in PAH and other advanced lung diseases, they offer research studies to advance the understanding and treatment options for pulmonary arterial hypertension and they have dedicated nurses to help support their goal […]

FAQ’s: CTEPH, Blood Clots, Corrective Surgery, PAH Centers

Your Questions Answered Who should be worried about CTEPH? Chronic Thromboembolic Pulmonary Hypertension (CTEPH) develops when blood clots accumulate in the lungs (pulmonary arteries).  Most patients that develop blood clots in the lungs are able to dissolve these clots with the help of blood thinners.  However, some patients may never be aware that they have […]