Your Questions Answered. Our readers have submitted some great questions.  We value your questions and encourage you to continue to tell us about your interests and questions. What is happening with the implanted Remodulin Pump? The FDA recently announced they are not ready to approve the implanted pump system for the delivery of continuously infused Remodulin.  They are … [Read more...]

We are lucky to have some patient contributors to our website.  I have known Donna and Patricia for many years.  They have been very active in the local pulmonary hypertension community.  They offer the following insight into the role of support groups. By Patricia Harrington and Donna Green The support of family and friends is a key element of coping with any complex medical … [Read more...]

I recently lost a friend and patient of almost a decade.  Her battle with familial pulmonary hypertension started when she was a young girl and her mother died from the disease.  I met her in her early twenties when she already had severe PAH.  Her brother had been treated for severe PAH for several years prior. When I first met her, she had a young daughter, the light of … [Read more...]

Since November is Pulmonary Hypertension Awareness month, we like to reflect on the progress made on this site and in the PAH community in general.  2014 has been an important and busy year for pulmonary hypertension.  First, we would like to thank our readers for making this website a tremendous success.  Each month, thousands of people visit this site to learn about pulmonary … [Read more...]

One of the most common problems I see on a daily basis is that patients struggle to limit their salt intake to the 2,000mg per day goal for Pulmonary Hypertension patients.  Unlike fluid restrictions where everyone can measure precisely how much fluid they drink, keeping track of salt intake can be very difficult. Let’s start with some basic terms.  Salt is the same as … [Read more...]