Thousands of Pulmonary Arterial Hypertension patients across America are now experiencing a crisis.  They previously received support from Caring Voices Coalition. With the closing of Caring Voices, many of these patients have been unable to find foundation support, leaving them responsible for many thousands of dollars per month to receive their PAH medications. The PHA and … [Read more...]

The end of the year brings many celebrated happenings. It is a wonderful time of year to celebrate coming together with family and friends.  It also brings a much less celebrated event…open enrollment. Open Enrollment We are currently in the middle of Medicare/Medicaid open enrollment which began October 15th and will end December 7th. Coverage chosen during this time will … [Read more...]

As more and more treatments become available for PAH and more patients are diagnosed and living with this chronic and progressive disease, there seems to be more and more news of biopharmaceutical companies jumping on board to develop and eventually sell treatments for PH.  It seems nearly every day there is a headline stating companies have merged or been purchased or even … [Read more...]

Pulmonary Hypertension Patients Take Note! The pulmonary hypertension community should raise their voices and make noise.  We stand at the brink of a dangerous time.  The federal government is seeking to change the health care system that has allowed the greatest advances in the care of PAH in the last 50 years. We are not advocating for any particular political party or even … [Read more...]