November is the official Pulmonary Hypertension Awareness month. It is important to raise awareness about Pulmonary Hypertension in every community. Heightened awareness leads to better care for PAH patients, increased referrals to pulmonary hypertension specialty centers, decreased time to diagnosis, and increased funds for research for new treatments and potentially a cure. … [Read more...]
Pulmonary Hypertension Caregiver Burnout
Pulmonary Arterial Hypertension is a rare a debilitating disease. People with the disease have “good days” and “bad days” and as the disease progresses the frequency of good days becomes less and less. Behind every patient that successfully navigates daily life with PAH is at least one if not a team of amazing caregivers. … [Read more...]
5 Steps For Making Moving with PAH Less Stressful
Moving can be both exciting and stressful for everyone. Finding a new place to live, learning a new neighborhood, meeting new friends all takes time and energy. For PAH patients there is an added stress of finding a PAH expert to transfer medical care to. … [Read more...]
How High Is Too High- Altitude And PAH
Has your doctor advised that you avoid high elevation? This is a common problem. The higher the elevation (or altitude) the less oxygen there is in the air. … [Read more...]
Orenitram Now Available To Treat PAH
Orenitram (trepostinil), fondly referred to by some as oral Remodulin, was approved by the FDA to treat PAH in December 2013 and is now available by prescription to the public. … [Read more...]
