The first PAH State Task Force has been created in Massachusetts. The purpose of the force is to monitor and report annually on advances in research, lung transplantation, public awareness, health care delivery and improvements in early and accurate diagnosis all of which will affect how health care professionals provide care for patients with Pulmonary Arterial … [Read more...]
3 Tips to Help PAH Patients Cope with Allergies
You know what they say: April showers bring May flowers…..and allergies. The nasal congestion, running nose, itchy eyes and sore throat can be a pain for anyone suffering from allergies. These symptoms are especially bothersome for Pulmonary Hypertension patients. Read below for 3 tips to help PAH patients get through allergy season. 1. Nasal Lubricant Many PAH … [Read more...]
New Option for Sub-Cutaneous Drug Delivery Coming Soon
The SteadyMed PatchPump SteadyMed is a new company to the PAH disease state. They have a novel small subcutaneous pump system (PatchPump) that is being studied for the delivery of Treprostinil (the generic version of Remodulin). The version of Treprostinil that is included in the pump is called Trevyent and is free of preservatives. The company just recently reported a … [Read more...]
Announcement: We’re Now Featuring the PHAWARE Podcast on Our Site!
We recently spoke to Steve Van Wormer, the co-founder and president of phaware global association. Steve has an amazing story and connection to the Pulmonary Hypertension Community. His son, Lucas, was diagnosed with Pulmonary Hypertension as a young child, prompting Steve and his wife into action. Because of his career in the entertainment industry, Steve has the unique … [Read more...]
Update on the Implanted Remodulin Pump
This week we learned that the much-awaited arrival of the Implanted Pump System for Remodulin would be further delayed. The FDA did not grant Medtronic and United Therapeutics approval. Details are scant but the announcement indicated that the device might be approved in the beginning of 2018. PAH Patients and doctors alike were let down by the delay. The delay does not … [Read more...]
