Your Questions Answered Who should be worried about CTEPH? Chronic Thromboembolic Pulmonary Hypertension (CTEPH) develops when blood clots accumulate in the lungs (pulmonary arteries). Most patients that develop blood clots in the lungs are able to dissolve these clots with the help of blood thinners. However, some patients may never be aware that they have had a blood clot … [Read more...]
September 2017 Update on Clinical Research Studies for PAH
Despite tremendous progress over the past 20 years, PAH remains an incurable disease. Only through ongoing clinical research trials will we continue to advance the care of PAH patients. Below I highlight some of the ongoing and soon to begin research studies for PAH. Ralinepag This is a molecule that is similar to Uptravi (Selexipag). The phase 2 study was recently completed … [Read more...]
When Should I feel Better After Starting PAH Treatment?
This is a very important question. Patients with PAH are often very frustrated by feeling poorly, often for one to two years prior to formal diagnosis with PAH. Once the secure diagnosis is made and treatment is started there is a sense of urgency for both patients and doctors to see tangible evidence of improvement. Improvement is measured in many different ways. You may … [Read more...]
Oxygen Saturation and Breathlessness in PAH
I can’t breathe! I feel short of breath all of the time. We hear these statements every day at PAH specialty centers. We take vital signs of blood pressure, heart rate, respiration rate and oxygen saturation and patients are always surprised if their oxygen saturations are within normal limits. Read below to learn more. What is oxygen saturation? Oxygen saturation measures … [Read more...]
Increased Interest in PAH: What it Means for Patients
As more and more treatments become available for PAH and more patients are diagnosed and living with this chronic and progressive disease, there seems to be more and more news of biopharmaceutical companies jumping on board to develop and eventually sell treatments for PH. It seems nearly every day there is a headline stating companies have merged or been purchased or even … [Read more...]
