2016 PAH Comprehensive Care Center Update

PH TEAMOne of the great challenges in medicine in general and Pulmonary Arterial Hypertension in particular is finding a doctor and treatment team that will provide you with the best care.  This is particularly important as treatment choices for PAH medications have become plentiful and more doctors are comfortable with some of the oral medications.  Defining quality medical care is also complicated.  Everyone wants to believe that their doctor is great.  And all doctors want to believe that they are great at what they do.  However, with 15 treatment options and numerous clinical trials ongoing, staying abreast of the latest development is more than the average physician is capable of doing.

Comprehensive Care Centers for Pulmonary Hypertension

In response to growing concern that many patients are receiving care from physicians that are not truly expert in PAH, the Pulmonary Hypertension Association set out to develop a certification system to recognized different levels of expertise in treating physicians.  This is designed to help patients receive the best care.

Two levels of certification have been developed.  The highest level of care is Comprehensive Care Center (CCC).  When we first wrote about CCCs in February of 2015 there were 11 accredited centers. There are currently 32 CCCs across the country with more to come.  These programs have a physician leader that is expert in all available treatments, a nurse coordinator who is knowledgeable in helping patients navigate their way through PAH hurdles.  All CCCs are required to participate in research and in educational activities.  These 32 programs have well-developed collaboration with surgeons, anesthesiologists, rheumatologists and other specialists to provide care for PAH patients under any circumstance.  They can provide expert care to patients in the office and hospital.  They are also affiliated or have relationships with lung transplantation programs.

Regional Care Centers for Pulmonary Hypertension

Recognizing that not every patient will have access to a Comprehensive Care Center, a second designation was developed called a Regional Care Center (RCC).  These programs have less expertise than Comprehensive Care Centers but still are able to begin the diagnostic process and initiate treatment for PAH patients.  They are required to collaborate with a CCC.  In general RCCs will be prescribing oral therapies and will send sicker patients to CCC for further evaluation and treatment.

We have included an updated list of Comprehensive Care Centers below.  The Pulmonary Hypertension Association will start recognizing Regional Care Centers soon.  Stay tuned for an update about Regional Care Centers.


Arizona

Arizona Pulmonary Specialists, LTD

3330 North 2nd Street, #300

Phoenix, AZ 85012

Director: Jeremy Feldman, MD

Appointments: (602) 443-0184


California

Cottage Health System

Cottage Pulmonary Hypertension Center

2403 Castillo Street, Suite 206

Santa Barbara, CA 93105

Director: Jeffrey S. Sager, MD

Appointments: (805) 898-8840

Stanford University

Stanford Adult Pulmonary Hypertension Clinic

Chest Clinic 300 Pasteur Drive, A13, Ambulatory Care Clinic 2

M/C 5351

Stanford, CA 94305-5351

Director: Roham T. Zamanian, MD

Appointments: (650) 723-1474

University of California, at San Francisco Medical Center

University of California, San Francisco (UCSF) Pulmonary Hypertension Program

400 Parnassus Avenue

Level B-1, APL 094

San Francisco, CA 94143-0124

Director: Teresa De Marco, MD

Appointments: (415) 353-9088


Colorado

University of Colorado Denver | Anschutz Medical Campus

Pulmonary Hypertension Program

12605 E. 16th Ave, Room 3.2203

Aurora, CO 80045

Director: David Badesch, MD & Todd Bull, MD

Appointments: (720) 848-6518


Connecticut

Yale University School of Medicine

Yale Pulmonary Vascular Disease Program

333 Cedar Street

New Haven, CT 06520

Director: Terence K. Trow, MD

Appointments: (203) 785-4196


Florida

Mayo Clinic Florida

Pulmonary Hypertension Clinical Program

4500 San Pablo Road S

Jacksonville, FL 32224

Director: Charles D. Burger, MD

Appointments (Patient Line): (904) 953-2272

Appointments (Physician Line): (904) 953-0321

Orlando Health Heart Institute

Pulmonary Vascular Disease Program

1222 South Orange Avenue

Orlando, FL 32806

Director: James H. Tarver, MD

Appointments: (407) 650-1347


Iowa

University of Iowa

Heart and Vascular Center – Pulmonary Hypertension Program


200 Hawkins Drive

Iowa City, IA 52242

Director: Linda Cadaret, MD

Appointments: (319) 356-7102


Kansas

The University of Kansas Hospital

University of Kansas Pulmonary Hypertension Program

3901 Rainbow Blvd

MS 3007

Kansas City, KS 66160

Director: Timothy Williamson, MD

Appointments: (913) 588-4098


Kentucky

Kentuckiana Pulmonary Associates

100 West Market Street

Suite 2

Louisville, KY 40202

Director: John Wesley McConnell, MD

Appointments: (502) 587-8000


Louisiana

University Medical Center New Orleans

Comprehensive Pulmonary Hypertension Center

2025 Gravier Street, Suite 615

New Orleans, LA 70112

Directors: Matthew Lammi, MD & Shigeki Saito, MD

Appointments: (504) 903-2387


Maryland

Johns Hopkins University

Johns Hopkins Pulmonary Hypertension Program

601 North Caroline Street

7th Floor, Suite C

Baltimore, MD 21287

Director: Paul Hassoun, MD

Appointments: (410) 614-6311


Massachusetts

Brigham and Women’s Hospital

Pulmonary Vascular Disease Program | Center for Pulmonary Heart Disease

Watkins Clinic – Carl J. and Ruth Shapiro Cardiovascular Center

70 Francis Street

Boston, MA 02115

Director: Aaron Waxman, MD, PhD

Appointments: (857) 307-4000


Michigan

University of Michigan

1500 East Medical Center Drive

Ann Arbor, MI 48109-5853

Director: Vallerie V. McLaughlin, MD

Appointments: (888) 287-1082


Minnesota

Mayo Clinic

200 1st Street SW

Rochester, MN 55905

Director: Robert P. Frantz, MD

Appointments: (502) 587-8000


Missouri

Washington University at Barnes-Jewish Hospital

4921 Parkview Place

Suite B

St. Louis, MO 63110

Director: Murali M. Chakinala, MD

Appointments: (314) 454-8917


New York

Columbia University-New York Presbyterian Hospital

3959 Broadway

CH-2N, Division of Pediatric Cardiology

New York, NY 10032

Director: Erika Berman Rosenzweig, MD

Appointments: (212) 305-4436

Weill Cornell Medical Center-New York Presbyterian Hospital

520 East 70th Street

New York, NY 10021

Director: Evelyn Horn, MD

Appointments: (212) 746-2381


North Carolina

University of North Carolina at Chapel Hill

University of North Carolina Pulmonary Hypertension Program

102 Mason Farm Road, CB 7020

Chapel Hill, NC 27599

Director: H. James Ford, MD

Appointments: (984) 974-5775


Ohio

University of Cincinnati

University of Cincinnati Medical Center Pulmonary Hypertension Program

UC Health Physicians Office (Clifton)

222 Piedmont Avenue

Suite 4300

Cincinnati, OH 45219

Director: Jean Elwing, MD

Appointments: (513) 475-8523


Pennsylvania

Allegheny Health Network

Allegheny General Hospital

320 East North Avenue

Pittsburgh, Pa. 15212

Director: Raymond L. Benza, MD

Appointments: (412) 359-6739

University of Pennsylvania

Perelman Center for Advanced Medicine at the Hospital of the University of Pennsylvania

3400 Civic Center Boulevard

Philadelphia, PA 19104

Penn Presbyterian Medical Center
51 North 39th Street

Philadelphia, PA 19104

Director: Steven M. Kawut, MD, MS

Appointments: 800-789-PENN (7366)


Rhode Island

Rhode Island Hospital – Brown University

Rhode Island Hospital Pulmonary Hypertension Center

593 Eddy Street

Providence, RI 02903

Director: James Klinger, MD

Appointments: (401) 444-3570


Tennessee

Vanderbilt Medical Center

Vanderbilt Pulmonary Vascular Center

1301 Medical Center Drive

Nashville, TN 37212

Director: Ivan Robbins, MD

Appointments: (615) 322-5879


Texas

University of Texas Southwestern Medical Center

UT Southwestern Pulmonary Hypertension Program

5939 Harry Hines Blvd, Ste 600

Dallas, TX 75390

Director: Kelly M. Chin, MD, MSCS

Appointments (New Patients): (214) 645-8300

Appointments (Established Patients): (214) 645-5505


Virginia

Inova Fairfax Hospital

Inova Advanced Lung Disease Management Program

3300 Gallows Road

Falls Church, VA 20042

Directors: Steven D. Nathan, MD & Oksana A. Shlobin, MD

Appointments (New Patients): (703) 776-6168

Appointments (Established Patients): (703) 776-2986

Virginia Commonwealth University

411 East Marshall Street

Richmond, VA 23298

Director: Dan Grinnan, MD

Appointments: (804) 828-2161


Wisconsin

Froedtert Hospital and Medical College of Wisconsin

Froedtert Hospital and Medical College of Wisconsin Pulmonary Hypertension Service

9200 West Wisconsin

Suite E5200

Milwaukee, WI 53226

Director: Kenneth Presberg, MD

Appointments: (414) 805-6633