• Home
  • About Us
  • Blog

Pulmonary Hypertension RN

  • What is Pulmonary Hypertension?
    • What is Pulmonary Hypertension?
    • Pulmonary Hypertension Symptoms
    • Types of Pulmonary Hypertension
    • Causes of Pulmonary Hypertension
    • PH vs. PAH
    • Diastolic Heart Failure vs. PAH
    • WHO Group 3 Pulmonary Hypertension, IPF & COPD
    • Pulmonary Veno-Occlusive Disease
    • Hereditary Hemorrhagic Telangiectasia (HHT)
      • Hereditary Hemorrhagic Telangiectasia (HHT) Treatment
    • Functional Classification of Pulmonary Hypertension
    • Congenital Heart Disease
      • Eisenmenger’s Syndrome
      • Update on Management of PAH-CHD
      • Congenital Heart Disease & Sleep Apnea
      • Complex Congenital Heart Disease
      • Atrial Septal Defect and Pulmonary Arterial Hypertension
    • Pediatric Pulmonary Arterial Hypertension
    • Sickle Cell and Pulmonary Hypertension
    • Stimulant Associated Pulmonary Arterial Hypertension
    • Porto-Pulmonary Syndrome
    • Research, Life Expectancy & Prognosis for PH
  • Diagnosing & Monitoring PAH
    • Pulmonary Arterial Hypertension Diagnosis
    • How Am I Doing? Assessing Your PAH.
    • Blood Tests
    • Cardiopulmonary Exercise Test (CPET)
    • CT (Computed Tomography) Scan
    • Echocardiogram: An Overview
    • Echocardiogram: A Detailed Look
    • Pulmonary Function Tests (PFTs)
    • Right Heart Catheterization
    • Six Minute Walk
    • Ventilation Perfusion Scan (VQ Scan)
    • CTEPH
      • CTEPH: WHO Group 4 Pulmonary Hypertension
      • PTE (Pulmonary Thromboendarterectomy) Surgery
      • Adempas used to Treat PAH and CTEPH
  • PAH Treatment
    • Pulmonary Hypertension Centers
    • Pulmonary Hypertension Treatments
    • Continuously Infused Therapies Used to Treat PH
    • Prostanoids for Treatment of PH
    • Adcirca and Revatio Used to Treat Pulmonary Arterial Hypertension (PAH)
    • Adempas used to Treat PAH and CTEPH
    • Tracleer, Letairis, and Opsumit Treatments
    • Oxygen Therapy for Pulmonary Hypertension
    • Salt and Water Restrictions
    • Exercise & PAH
    • Diuretics
    • Blood Thinners
    • Getting the Most Out of PAH Therapy
      • Letairis
      • Opsumit
      • Sildenafil (Revatio)
  • Research
  • FAQ’s
    • Implanted Remodulin Pump, Right Heart Catheterization, PAH & Pregnancy
    • Oral Treatments, Care Centers & Hole in Heart
    • FAQ’s: Altitude, Cold & Allergy Medications
    • FAQ’s: Psoriasis, Idiopathic PAH, Contraceptives & PAH
    • FAQ’s: Causes of Pulmonary Hypertension, Symptom Frequency & Care Centers
    • FAQ: PAH Experts, Pregnancy, Mild PAH & Vacationing
    • FAQ’s: CTEPH, Blood Clots, Corrective Surgery & PAH Care Centers
    • FAQ’s: VQ Scans & PAH Curable?
    • FAQ’s: Mild Pulmonary Hypertension?
    • FAQ’s: Boating, Swimming & Eating with PAH
    • FAQ’s: Borderline Pulmonary Hypertension, Hand Swelling, Children with PAH, Costs

3 Goals of PAH Fundraising

October 10, 2016 By Dr. Jeremy Feldman

pulmonary hypertension fundraisersWhy Is There So Much Fundraising for PAH?

Pulmonary arterial hypertension is a rare “orphan” disease.  The relatively small number of patients living with PAH means that they all need to band together to raise awareness, support each other and raise funds to further research in finding treatments and eventually a cure.

What Are The Goals Of Fundraising for PAH?

Pulmonary Hypertension fundraisers usually aim to achieve at least 1 if not more of the following 3 goals.

  1. To raise money. This is perhaps the most obvious goal of fundraising.  PAH fundraisers may be raising money for the Pulmonary Hypertension Association (PHA) which helps many pulmonary hypertension patients.  The PHA uses donations to provide education, lobby government officials and fund research aimed at finding a PH cure.
  2. To raise awareness. Many patients have symptoms of PAH for over 2 years before they are accurately diagnosed. Raising awareness is an important part of decreasing the time between symptom onset and treatment for PAH. It is important to put PAH on the radar of primary care physicians, cardiologists, pulmonologists, rheumatologists and any patient having the symptoms of pulmonary hypertension to know about pulmonary arterial hypertension.
  3. To support patients. Fundraisers bring PAH patients, caregivers, friends and family members together for one event.  Often PAH patients feel isolated by their disease. It is hard to look “normal” and be suffering from such a catastrophic illness.  Friends and family members may not understand why a patient can walk through the grocery store one day and barely walk to the mail box the next.  Having PAH patients come together is empowering and decreases the feeling of isolation.

How Do I Get Involved?

Pulmonary Arterial Hypertension fundraisers are happening every month all over the United States. Your pulmonary hypertension specialist will often have fliers for upcoming fundraisers in their office or you can ask them to connect you with the PHA contact person in your region.  Often your local PAH Support Group will be involved in the fundraisers in your area. You can find out more about local support groups and events on the PHA’s website at phassociation.org. If you don’t find something you are interested in participating in consider starting your own.

Filed Under: Living with PAH, Uncategorized

PAH Life Expectancy

PAH Research

Research, Life Expectancy & Prognosis for PH

Major Developments in Pulmonary Hypertension Affecting Prognosis 1.     Approval of

Where to Get Treatment?

CCCs for PAH

Pulmonary Hypertension Centers

Where to get treatment for pulmonary hypertension? Pulmonary arterial hypertension is a

Popular Posts

steadymed patchpump

New Option for Sub-Cutaneous Drug Delivery Coming Soon

By Dr. Jeremy Feldman

The SteadyMed PatchPump SteadyMed is a new company to the PAH disease state.  They have a novel small subcutaneous pump

Oxygen as a treatment for PAH

Do I Need Oxygen?

By Dr. Jeremy Feldman

One of the most common concerns that patients with lung disease express is whether or not they need to use

good news in pah

 

Disclaimer

Recent Blog Posts

  • In Memoriam:  Greg Ahearn, MD June 16, 2024
  • Sotatercept (Winrevair) Approved! June 1, 2024
  • Disappointing News for Rodatristat Ethyl October 11, 2023

Categories

Archives