At PulmonaryHypertensionRN.com, our mission is to provide accurate and easy to use information about pulmonary hypertension. We recently received a question from a reader that made me reflect on how scary getting a diagnosis of pulmonary hypertension can be for patients and their families. The reader asked what they should do after they were told that their echo-estimated … [Read more...]
November 18th is the First Ever CTEPH Awareness Day
As part of PAH Awareness Month this year November 18th has been assigned as the official CTEPH Awareness Day. This will be the first ever awareness day focused on CTEPH or chronic thromboembolic pulmonary hypertension. … [Read more...]
I Was Misdiagnosed With PAH
We look forward to and read every email readers send us through our contact form. We find the questions and comments submitted to be very valuable and try to respond to each contact. We recently had a reader submit a great question and have written this blog to answer it. … [Read more...]
November is Pulmonary Hypertension Awareness Month
November is the official Pulmonary Hypertension Awareness month. It is important to raise awareness about Pulmonary Hypertension in every community. Heightened awareness leads to better care for PAH patients, increased referrals to pulmonary hypertension specialty centers, decreased time to diagnosis, and increased funds for research for new treatments and potentially a cure. … [Read more...]
PH Centers of Excellence
A large majority of the comments/questions we receive from our readers are requests for recommendations for a PAH expert close to home. This is a very important question that is very difficult to answer. Pulmonary arterial hypertension is a rare disease, community physicians may not know of any PH specialists in their area. … [Read more...]
