A patient with PH isn’t feeling well.  They decide to call their doctor’s office and speak to their nurse coordinator.  The conversation starts with the nurse asking about symptoms such as shortness of breath, lightheadedness or dizziness, and fatigue. … [Read more...]

So you’ve been diagnosed with pulmonary arterial hypertension and your physician has prescribed a new medication.  You are anxious to get started and run to the pharmacy to pick up this very important medication only to be told they can’t give it to you.  It is frustrating for patients and providers when there are problems with pharmacies filling new prescriptions.  Why does … [Read more...]

My patients ask me all sorts of questions-- how am I doing, is my PAH getting better, what activities can I do and what should I avoid.  In more than 14 years of caring for PAH patients I can remember only one patient asking about sexual activity.  There is a paucity of published information and patients are often embarrassed or shy when it comes to asking.  Nonetheless, just … [Read more...]

Many patients diagnosed with pulmonary hypertension are considered permanently disabled. … [Read more...]

Being diagnosed with pulmonary hypertension is life changing.  Many patients are scared to exercise or participate in activities that they previously enjoyed.  Many patients have felt too tired or too short of breath to exercise and have become deconditioned or out of shape.  Once therapy for pulmonary arterial hypertension has been initiated and the patient has stabilized they … [Read more...]