My patients ask me all sorts of questions-- how am I doing, is my PAH getting better, what activities can I do and what should I avoid. In more than 14 years of caring for PAH patients I can remember only one patient asking about sexual activity. There is a paucity of published information and patients are often embarrassed or shy when it comes to asking. Nonetheless, just … [Read more...]
Is Pulmonary Hypertension A Disability?
Many patients diagnosed with pulmonary hypertension are considered permanently disabled. … [Read more...]
Exercising After Being Diagnosed With Pulmonary Hypertension.
Being diagnosed with pulmonary hypertension is life changing. Many patients are scared to exercise or participate in activities that they previously enjoyed. Many patients have felt too tired or too short of breath to exercise and have become deconditioned or out of shape. Once therapy for pulmonary arterial hypertension has been initiated and the patient has stabilized they … [Read more...]
My Pulmonary Hypertension Journey
Every patient I have met in our pulmonary hypertension clinic has one thing in common; their journey to diagnosis and treatment for their pulmonary arterial hypertension has been long and frustrating. The average time from symptom onset to diagnosis is two and a half years! … [Read more...]
Who’s Who at your Pulmonary Hypertension Center
The first visit at a PH center can be very overwhelming. Many patients receive the news that they have a serious life threatening disease they have never heard of and are presented with treatment options including drugs they don’t know anything about. Many times the patient will be introduced to a team of people that will be helping to provide care for them going forward. It … [Read more...]
