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Pulmonary Hypertension RN

  • What is Pulmonary Hypertension?
    • What is Pulmonary Hypertension?
    • Pulmonary Hypertension Symptoms
    • Types of Pulmonary Hypertension
    • Causes of Pulmonary Hypertension
    • PH vs. PAH
    • Diastolic Heart Failure vs. PAH
    • WHO Group 3 Pulmonary Hypertension, IPF & COPD
    • Pulmonary Veno-Occlusive Disease
    • Hereditary Hemorrhagic Telangiectasia (HHT)
      • Hereditary Hemorrhagic Telangiectasia (HHT) Treatment
    • Functional Classification of Pulmonary Hypertension
    • Congenital Heart Disease
      • Eisenmenger’s Syndrome
      • Update on Management of PAH-CHD
      • Congenital Heart Disease & Sleep Apnea
      • Complex Congenital Heart Disease
      • Atrial Septal Defect and Pulmonary Arterial Hypertension
    • Pediatric Pulmonary Arterial Hypertension
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    • Research, Life Expectancy & Prognosis for PH
  • Diagnosing & Monitoring PAH
    • Pulmonary Arterial Hypertension Diagnosis
    • How Am I Doing? Assessing Your PAH.
    • Blood Tests
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    • CT (Computed Tomography) Scan
    • Echocardiogram: An Overview
    • Echocardiogram: A Detailed Look
    • Pulmonary Function Tests (PFTs)
    • Right Heart Catheterization
    • Six Minute Walk
    • Ventilation Perfusion Scan (VQ Scan)
    • CTEPH
      • CTEPH: WHO Group 4 Pulmonary Hypertension
      • PTE (Pulmonary Thromboendarterectomy) Surgery
      • Adempas used to Treat PAH and CTEPH
  • PAH Treatment
    • Pulmonary Hypertension Centers
    • Pulmonary Hypertension Treatments
    • Continuously Infused Therapies Used to Treat PH
    • Prostanoids for Treatment of PH
    • Adcirca and Revatio Used to Treat Pulmonary Arterial Hypertension (PAH)
    • Adempas used to Treat PAH and CTEPH
    • Tracleer, Letairis, and Opsumit Treatments
    • Oxygen Therapy for Pulmonary Hypertension
    • Salt and Water Restrictions
    • Exercise & PAH
    • Diuretics
    • Blood Thinners
    • Getting the Most Out of PAH Therapy
      • Letairis
      • Opsumit
      • Sildenafil (Revatio)
  • Research
  • FAQ’s
    • Implanted Remodulin Pump, Right Heart Catheterization, PAH & Pregnancy
    • Oral Treatments, Care Centers & Hole in Heart
    • FAQ’s: Altitude, Cold & Allergy Medications
    • FAQ’s: Psoriasis, Idiopathic PAH, Contraceptives & PAH
    • FAQ’s: Causes of Pulmonary Hypertension, Symptom Frequency & Care Centers
    • FAQ: PAH Experts, Pregnancy, Mild PAH & Vacationing
    • FAQ’s: CTEPH, Blood Clots, Corrective Surgery & PAH Care Centers
    • FAQ’s: VQ Scans & PAH Curable?
    • FAQ’s: Mild Pulmonary Hypertension?
    • FAQ’s: Boating, Swimming & Eating with PAH
    • FAQ’s: Borderline Pulmonary Hypertension, Hand Swelling, Children with PAH, Costs

2017 PAH Comprehensive Care Center Update

February 2, 2017 By Dr. Jeremy Feldman

CCCs for PAHSince 2014 the Pulmonary Hypertension Association has been working to provide a more useful directory of PAH experts. Prior to this time physicians were listed by request but were not vetted in any way. They simply filled out a survey and were on the site as a PAH expert. This system worked for many years when PAH was relatively unknown and very few treatments were available. As more and more treatments became available and easier to prescribe and access, more physicians added their names to the list, many with very little experience or specialized PAH training. The list was very rarely updated and the information became out of date almost as soon as it was published.

The new system requires an extensive process of proving excellent knowledge, experience and skill at managing the care of pulmonary hypertension patients. Centers must demonstrate that they have experience with all types of treatments, offer research opportunities, have nurse coordinators dedicated to PAH, be able to care for patients in the office and hospital setting, have a multidisciplinary team and be associated with a lung transplant center. The PHA sends a visiting physician and nurse to each center to confirm all of the requirements are being met. The center applying to be a PAH Comprehensive Care Center must also pay a monetary fee.

The PHA also has plans to accredit Regional Clinical Programs. These centers will work with Comprehensive Care Centers to provide care for a larger population of PAH patients. The vetting process for RCPs requires them to be knowledgeable in managing PAH patients. The requirements are scaled back, not requiring as much office, hospital and multidisciplinary support and infrastructure as Comprehensive Care Centers. The PHA has moved back the start date for accepting applications for RCPs several times, most recently posting that they will begin the process in early 2017. Check back for an update to find out when and where the first RCP will be announced.

As of today there are 44 approved PAH Comprehensive Care Centers in 27 states. We have included a list of current centers below.

 

Arizona

Arizona Pulmonary Specialists, LTD

3330 North 2nd Street, #300

Phoenix, AZ 85012

Director: Jeremy Feldman, MD

Appointments: (602) 443-0184

Accreditation Period: 2015 – 2017

 

California

Cottage Health System

Cottage Pulmonary Hypertension Center

2403 Castillo Street, Suite 206

Santa Barbara, CA 93105

Director: Jeffrey S. Sager, MD

Appointments: (805) 898-8840

Accreditation Period: 2014 – 2017

 

Stanford University

Stanford Adult Pulmonary Hypertension Clinic

Chest Clinic 300 Pasteur Drive, A13, Ambulatory Care Clinic 2

M/C 5351

Stanford, CA 94305-5351

Director: Roham T. Zamanian, MD

Appointments: (650) 723-1474

Accreditation Period: 2014 – 2017

 

UC Davis Health System

Advanced Lung Disease Program

2315 Stockton Boulevard

Sacramento, CA 95817

Director: Roblee Allen, MD

Appointments: (916) 734-5360

Accreditation Period: 2016 – 2019

 

University of California, at San Francisco Medical Center

University of California, San Francisco (UCSF) Pulmonary Hypertension Program

400 Parnassus Avenue

Level B-1, APL 094

San Francisco, CA 94143-0124

Director: Teresa De Marco, MD

Appointments: (415) 353-9088

Accreditation Period: 2015 – 2018

 

Colorado

University of Colorado Denver | Anschutz Medical Campus

Pulmonary Hypertension Program

12605 E. 16th Ave, Room 3.2203

Aurora, CO 80045

Director: David Badesch, MD & Todd Bull, MD

Appointments: (720) 848-6518

Accreditation Period: 2015 – 2017

 

Connecticut

Yale University School of Medicine

Yale Pulmonary Vascular Disease Center

333 Cedar Street

New Haven, CT 06520

Director: Wassim H. Fares, MD

Appointments: (203) 785-4196

Accreditation Period: 2016 – 2018

 

Florida

Mayo Clinic Florida

Pulmonary Hypertension Clinical Program

4500 San Pablo Road S

Jacksonville, FL 32224

Director: Charles D. Burger, MD

Appointments (Patient Line): (904) 953-2272

Appointments (Physician Line): (904) 953-0321

Accreditation Period: 2015 – 2018

 

Illinois

University of Chicago

Pulmonary Hypertension Program

5841 S. Maryland Ave.

Chicago, IL 60637

Director: Remzi Bag, MD

Appointments: (773) 702-5589

Accreditation Period: 2016 – 2019

 

Iowa

University of Iowa

Heart and Vascular Center – Pulmonary Hypertension Program

200 Hawkins Drive

Iowa City, IA 52242

Director: Linda Cadaret, MD

Appointments: (319) 356-7102

Accreditation Period: 2015 – 2018

 

Kansas

The University of Kansas Hospital

University of Kansas Pulmonary Hypertension Program

3901 Rainbow Blvd

MS 3007

Kansas City, KS 66160

Director: Timothy Williamson, MD

Appointments: (913) 588-4098

Accreditation Period: 2015 – 2018

 

Kentucky

Kentuckiana Pulmonary Associates

100 West Market Street

Suite 2

Louisville, KY 40202

Director: John Wesley McConnell, MD

Appointments: (502) 587-8000

Accreditation Period: 2014 – 2017

 

Louisiana

University Medical Center New Orleans

Comprehensive Pulmonary Hypertension Center

2025 Gravier Street, Suite 615

New Orleans, LA 70112

Directors: Matthew Lammi, MD & Shigeki Saito, MD

Appointments: (504) 702-5057

Accreditation Period: 2015 – 2018

 

Maryland

Johns Hopkins University

Johns Hopkins Pulmonary Hypertension Program

601 North Caroline Street

7th Floor, Suite C

Baltimore, MD 21287

Director: Paul Hassoun, MD

Appointments: (410) 614-6311

Accreditation Period: 2015 – 2018

 

Massachusetts

Brigham and Women’s Hospital

Pulmonary Vascular Disease Program | Center for Pulmonary Heart Disease
Watkins Clinic – Carl J. and Ruth Shapiro Cardiovascular Center

70 Francis Street

Boston, MA 02115

Director: Aaron Waxman, MD, PhD

Appointments: (857) 307-4000

Accreditation Period: 2015 – 2018

 

Michigan

University of Michigan

1500 East Medical Center Drive

Ann Arbor, MI 48109-5853

Director: Vallerie V. McLaughlin, MD

Appointments: (888) 287-1082

Accreditation Period: 2015 – 2017

 

Minnesota

Mayo Clinic

200 1st Street SW

Rochester, MN 55905

Director: Robert P. Frantz, MD

Appointments: (502) 587-8000

Accreditation Period: 2015 – 2017

 

University of Minnesota Health

420 Delaware Street SE

Minneapolis, MN 55455

Director: Marc Pritzker, MD

Appointments: (612) 626-1376

Accreditation Period: 2016 – 2019

 

Missouri

Washington University at Barnes-Jewish Hospital

4921 Parkview Place

Suite B

St. Louis, MO 63110

Director: Murali M. Chakinala, MD

Appointments: (314) 454-8917

Accreditation Period: 2015 – 2017

 

New York

Columbia University-New York Presbyterian Hospital

3959 Broadway

CH-2N, Division of Pediatric Cardiology

New York, NY 10032

Director: Erika Berman Rosenzweig, MD

Appointments: (212) 305-4436

Accreditation Period: 2015 – 2017

 

University of Rochester Medical Center

601 Elmwood Avenue

Rochester, NY 14642

Director: R. James White, MD, PhD

Appointments: (585) 486-0869

Accreditation Period: 2016 – 2019

 

Weill Cornell Medical Center-New York Presbyterian Hospital

520 East 70th Street

New York, NY 10021

Director: Evelyn Horn, MD

Appointments: (212) 746-2381

Accreditation Period: 2015 – 2017

 

North Carolina

University of North Carolina at Chapel Hill

University of North Carolina Pulmonary Hypertension Program

102 Mason Farm Road, CB 7020

Chapel Hill, NC 27599

Director: H. James Ford, MD

Appointments: (984) 974-5775

Accreditation Period: 2015 – 2018

 

Ohio

University of Cincinnati

University of Cincinnati Medical Center Pulmonary Hypertension Program

UC Health Physicians Office – Holmes Building

200 Albert Sabin Way

3rd Floor

Cincinnati, OH 45219

Director: Jean Elwing, MD

Appointments: (513) 475-8523

Accreditation Period: 2014 – 2017

 

Oregon

The Oregon Clinic

Pulmonary, Critical Care & Sleep Medicine – West

9155 SW Barnes Rd, Suite 840

Portland, OR 97225

Pulmonary, Critical Care & Sleep Medicine – East

1111 NE 99th Ave, Suite 200

Portland, OR 97220

Director: John A. Butler, MD & Wayne Strauss, MD

Appointments (West): (503) 297-3778

Appointments (East): (503) 963-3030

Accreditation Period: 2016 – 2019

 

Pennsylvania

Allegheny Health Network

Allegheny General Hospital

320 East North Avenue

Pittsburgh, Pa. 15212

Director: Raymond L. Benza, MD

Appointments: (412) 359-6739

Accreditation Period: 2015 – 2018

 

University of Pennsylvania

Perelman Center for Advanced Medicine at the Hospital of the University of Pennsylvania

3400 Civic Center Boulevard

Philadelphia, PA 19104

Harron Lung Center

3737 Market Street, 10th Floor

Philadelphia, PA 19104

Director: Steven M. Kawut, MD, MS

Appointments: 800-789-PENN (7366)

Accreditation Period: 2014 – 2017

 

University of Pittsburgh Medical Center

UPMC Comprehensive Pulmonary Hypertension Program

Scaife Hall, Suite 5B. 200 Lothrop Street

Pittsburgh, PA 15213

Director: Stephen Y. Chan, MD, PhD

Appointments: (412) 647-3429

Accreditation Period: 2016 – 2019

 

Rhode Island

Rhode Island Hospital – Brown University

Rhode Island Hospital Pulmonary Hypertension Center

375 Wampanoag Trail, Suite 302B

East Providence, RI 02915

Director: James Klinger, MD

Appointments: (401) 649-4070

Accreditation Period: 2015 – 2017

 

Tennessee

Vanderbilt Medical Center

Vanderbilt Pulmonary Vascular Center

1301 Medical Center Drive

Nashville, TN 37212

Director: Ivan Robbins, MD

Appointments: (615) 322-5879

Accreditation Period: 2016 – 2019

 

Texas

Houston Methodist Hospital

Houston Methodist Pulmonary Hypertension Program

6445 Main Street

Houston, TX 77030

Director: Zeenat Safdar, MD

Appointments: (713) 441-7182

Accreditation Period: 2016 – 2019

 

University of Texas Southwestern Medical Center

UT Southwestern Pulmonary Hypertension Program

5939 Harry Hines Blvd, Ste 600

Dallas, TX 75390

Director: Kelly M. Chin, MD, MSCS

Appointments (New Patients): (214) 645-8300

Appointments (Established Patients): (214) 645-5505

Accreditation Period: 2015 – 2017

 

Utah

University of Utah

Pulmonary Hypertension & Dyspnea Center

50 N. Medical Drive

Salt Lake City, UT 84132

Directors: John J. Ryan, MD & Nathan Hatton, MD

Appointments: (801) 585-7676

Accreditation Period: 2016 – 2019

 

Virginia

Inova Fairfax Hospital

Inova Advanced Lung Disease Management Program

3300 Gallows Road

Falls Church, VA 20042

Directors: Steven D. Nathan, MD & Oksana A. Shlobin, MD

Appointments (New Patients): (703) 776-6168

Appointments (Established Patients): (703) 776-2986

Accreditation Period: 2014 – 2017

 

Virginia Commonwealth University

411 East Marshall Street

Richmond, VA 23298

Director: Dan Grinnan, MD

Appointments: (804) 828-2161

Accreditation Period: 2015 – 2017

 

Washington

University of Washington

Pulmonary Vascular Disease Program

1959 NE Pacific St.

Seattle, WA 98195

Director: David D. Ralph, MD

Appointments: (206) 598-7356

Accreditation Period: 2016 – 2019

 

Wisconsin

Aurora St. Luke’s Medical Center

Pulmonary Hypertension Clinic

4th Floor Galleria

2900 W. Oklahoma Ave.

Milwaukee, WI 53215

Director: Dianne Zwicke, MD

Appointments: (414) 646-2438

Accreditation Period: 2016 – 2019

 

Froedtert Hospital and Medical College of Wisconsin

Froedtert Hospital and Medical College of Wisconsin Pulmonary Hypertension Service

9200 West Wisconsin

Suite E5200

Milwaukee, WI 53226

Director: Kenneth Presberg, MD

Appointments: (414) 805-6633

Accreditation Period: 2015 – 2018

 

University of Wisconsin Hospital and Clinics

University of Wisconsin Pulmonary Hypertension Program

600 Highland Avenue

MC9988

Madison, WI 53792

Director: James Runo, MD

Appointments: (608) 263-7203

Accreditation Period: 2016 – 2019

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