• Home
  • About Us
  • Blog

Pulmonary Hypertension RN

  • What is Pulmonary Hypertension?
    • What is Pulmonary Hypertension?
    • Pulmonary Hypertension Symptoms
    • Types of Pulmonary Hypertension
    • Causes of Pulmonary Hypertension
    • PH vs. PAH
    • Diastolic Heart Failure vs. PAH
    • WHO Group 3 Pulmonary Hypertension, IPF & COPD
    • Pulmonary Veno-Occlusive Disease
    • Hereditary Hemorrhagic Telangiectasia (HHT)
      • Hereditary Hemorrhagic Telangiectasia (HHT) Treatment
    • Functional Classification of Pulmonary Hypertension
    • Congenital Heart Disease
      • Eisenmenger’s Syndrome
      • Update on Management of PAH-CHD
      • Congenital Heart Disease & Sleep Apnea
      • Complex Congenital Heart Disease
      • Atrial Septal Defect and Pulmonary Arterial Hypertension
    • Pediatric Pulmonary Arterial Hypertension
    • Sickle Cell and Pulmonary Hypertension
    • Stimulant Associated Pulmonary Arterial Hypertension
    • Porto-Pulmonary Syndrome
    • Research, Life Expectancy & Prognosis for PH
  • Diagnosing & Monitoring PAH
    • Pulmonary Arterial Hypertension Diagnosis
    • How Am I Doing? Assessing Your PAH.
    • Blood Tests
    • Cardiopulmonary Exercise Test (CPET)
    • CT (Computed Tomography) Scan
    • Echocardiogram: An Overview
    • Echocardiogram: A Detailed Look
    • Pulmonary Function Tests (PFTs)
    • Right Heart Catheterization
    • Six Minute Walk
    • Ventilation Perfusion Scan (VQ Scan)
    • CTEPH
      • CTEPH: WHO Group 4 Pulmonary Hypertension
      • PTE (Pulmonary Thromboendarterectomy) Surgery
      • Adempas used to Treat PAH and CTEPH
  • PAH Treatment
    • Pulmonary Hypertension Centers
    • Pulmonary Hypertension Treatments
    • Continuously Infused Therapies Used to Treat PH
    • Prostanoids for Treatment of PH
    • Adcirca and Revatio Used to Treat Pulmonary Arterial Hypertension (PAH)
    • Adempas used to Treat PAH and CTEPH
    • Tracleer, Letairis, and Opsumit Treatments
    • Oxygen Therapy for Pulmonary Hypertension
    • Salt and Water Restrictions
    • Exercise & PAH
    • Diuretics
    • Blood Thinners
    • Getting the Most Out of PAH Therapy
      • Letairis
      • Opsumit
      • Sildenafil (Revatio)
  • Research
  • FAQ’s
    • Implanted Remodulin Pump, Right Heart Catheterization, PAH & Pregnancy
    • Oral Treatments, Care Centers & Hole in Heart
    • FAQ’s: Altitude, Cold & Allergy Medications
    • FAQ’s: Psoriasis, Idiopathic PAH, Contraceptives & PAH
    • FAQ’s: Causes of Pulmonary Hypertension, Symptom Frequency & Care Centers
    • FAQ: PAH Experts, Pregnancy, Mild PAH & Vacationing
    • FAQ’s: CTEPH, Blood Clots, Corrective Surgery & PAH Care Centers
    • FAQ’s: VQ Scans & PAH Curable?
    • FAQ’s: Mild Pulmonary Hypertension?
    • FAQ’s: Boating, Swimming & Eating with PAH
    • FAQ’s: Borderline Pulmonary Hypertension, Hand Swelling, Children with PAH, Costs

Is Pulmonary Hypertension A Disability?

July 28, 2013 By Dr. Jeremy Feldman

Disability placard for pulmonary hypertension patientsMany patients diagnosed with pulmonary hypertension are considered permanently disabled.

Several factors play a part in determining if a patient is permanently disabled.

1. What functional class is the patient?

2. What therapies are being used?

3. How has the patient responded to therapy?

4. Are there other medical conditions contributing to the patients inability to work?

Many patients are on short term disability when they are first seen by a PH specialist because most patients are functional class III or IV before they are accurately diagnosed.  These patients generally stay on their disability benefits during the testing, diagnosis, and initiation of treatment.  Some patients respond well to therapy and depending on the type of work they do may return to work.  Other patients may take longer to stabilize on therapies or require more advanced therapies like the continuous infusions and remain on disability benefits.  Some patients respond well to therapy and are no longer disabled by their PAH but other diseases such as scleroderma still keep the patient from being able to work.

One of the most difficult parts of coping with the disease of pulmonary hypertension is the waxing and waning of symptoms.  Patients will have good days and bad days with no way of predicting when and how severe the bad days will be.  When filling out any disability questionnaires remember to answer the questions based on your bad days not just your good days.

Speak with your physician regarding your questions about working.  A conversation will lead to documentation in the practitioner’s notes about your ability to work or not work and will be useful down the road when records are requested. It is the patient’s responsibility to initiate and follow through with applying for disability benefits, go to http://www.ssa.gov/applyfordisability/ for information and to start the application process.  Your physician cannot submit records to support your claim without a bar code that is generated when you start the application process.

Applying for disability is a long process.  There are many hoops to jump through, forms to fill out, and questions to answer.  Most patients are denied benefits the first time around.  It may be a good idea to hire an attorney that specializes in disability claims to help ensure that your claim moves forward and records and facts are not overlooked while reviewing your file.

Filed Under: Blog, Home Page, Living with PAH

PAH Life Expectancy

PAH Research

Research, Life Expectancy & Prognosis for PH

Major Developments in Pulmonary Hypertension Affecting Prognosis 1.     Approval of

Where to Get Treatment?

CCCs for PAH

Pulmonary Hypertension Centers

Where to get treatment for pulmonary hypertension? Pulmonary arterial hypertension is a

Popular Posts

pulmonary hypertension research laboratory

Pulmonary Arterial Hypertension Research

By Dr. Jeremy Feldman

FDA Approval Process for PAH Drugs The past decade has seen many new drugs approved to treat PAH.  The development of a

boating with pulmonary arterial hypertension

FAQ’s: Boating, Swimming & Eating with PAH

By Dr. Jeremy Feldman

We greatly appreciate our readers who submit questions.  We try and select questions that are asked by

good news in pah

 

Disclaimer

Recent Blog Posts

  • In Memoriam:  Greg Ahearn, MD June 16, 2024
  • Sotatercept (Winrevair) Approved! June 1, 2024
  • Disappointing News for Rodatristat Ethyl October 11, 2023

Categories

Archives