Your Questions Answered. Our readers have submitted some great questions. We value your questions and encourage you to continue to tell us about your interests and questions. What is happening with the implanted Remodulin Pump? The FDA recently announced they are not ready to approve the implanted pump system for the delivery of continuously infused Remodulin. They are … [Read more...]
Update on Medical Management of Pulmonary Hypertension in Congenital Heart Disease (PAH-CHD)
In 1995 epoprostenol, a continuously infused prostanoid medication, was approved for the treatment of PAH. Although this medicine worked to decrease pulmonary artery pressures, there were many risks with this therapy in congenital heart disease (CHD) patients. Since an intravenous catheter was required, there was a small but real risk of blood stream infection. There was also … [Read more...]
Eisenmenger’s Syndrome
Congenital Heart Disease & Eisenmenger's Syndrome February 4th-7th is Congenital Heart Disease Awareness week. The incidence of congenital heart disease today is 1:100 live births. With today’s post , I wanted to discuss a complicated problem that adults who are born with congenital heart disease may suffer from for their entire lives: Eisenmenger’s Syndrome. A … [Read more...]
Patients Helping Other Patients
We are lucky to have some patient contributors to our website. I have known Donna and Patricia for many years. They have been very active in the local pulmonary hypertension community. They offer the following insight into the role of support groups. By Patricia Harrington and Donna Green The support of family and friends is a key element of coping with any complex medical … [Read more...]
Congenital Heart Disease: An Overview
What is Congenital Heart Disease? As we are developing from a single egg fertilized by a single sperm, cells divide and begin to develop into the different tissues of our adult bodies. This is a very complex process that is like a kind of perfectly choreographed ballet. A special cluster of cells slowly differentiates into the cardiovascular system. Cells that become the … [Read more...]
