Since 2014 the Pulmonary Hypertension Association has been working to provide a more useful directory of PAH experts. Prior to this time physicians were listed by request but were not vetted in any way. They simply filled out a survey and were on the site as a PAH expert. This system worked for many years when PAH was relatively unknown and very few treatments were available. … [Read more...]
FAQ’s: Causes of Pulmonary Hypertension, Symptom Frequency & Care Centers
Your Questions Answered Causes of Pulmonary Hypertension We received a variety of questions about the causes of pulmonary hypertension. I will provide a short refresher and link to a more detailed discussion. Pulmonary hypertension means elevated pressures within the pulmonary arteries. There are many different causes of this. Experts divide the work of pulmonary … [Read more...]
3 New Year’s Resolutions for PAH Patients
The streamers have fallen and the ball has dropped. 2017 is off to a fast start. The beginning of a new year is a great time to try something new or start healthier habits. Below are 3 resolutions to make the PAH community happier and healthier. 1. Get Involved The PAH community is an amazing group of committed and devoted patients, caregivers and supporters. Not only … [Read more...]
Healthy Eating: 5 Habits to Avoid
Eating Healthy with Pulmonary Hypertension For PAH patients, we spend a great deal of time talking about low salt diets and fluid restriction. I want to focus on a broader aspect of healthy eating. Enjoying food is a core pleasure. As our lifestyles have become more rushed and our foods more processed it has become more challenging to make good food choices. More than a … [Read more...]
Update on Caring Voice Coalition: January 13, 2017
Caring Voice Coalition will reopen for grant applications on Monday January 16th at 9am Eastern time. Patients who have yet to receive grant support should call and keep calling. You should also try and connect with Caring Voice by email and on their website. We have had encouraging news from several of the drug manufacturers that they are working with the federal … [Read more...]
