It is finally here! The Food and Drug Administration approved Remodulin in its implantable delivery system for treatment of Pulmonary Arterial Hypertension. We have been providing updates on the 8-year study that investigated the use of an implanted pump to deliver Remodulin removing the need for external pumps and are excited to announce it is finally approved. The pump … [Read more...]
Is Vaping Safe with Lung Disease? No!
Good Health Starts with Good Decisions Some things in life are under our control and others are not. Patients with PAH or any other lung disease already have impaired lung function. Avoiding further lung damage is crucial to your health. You and your doctor are probably working at improving your PAH through medications that cost a fortune. What else can you do to help … [Read more...]
Important Update About Foundation Support
Today two charitable foundations announced that they have reopened to help patients with PAH pay for their medications. The Patient Advocate Foundation and the PAN Foundation are now accepting applications. See below for details. Patient Advocate Foundation has copay grants to individuals with Medicare, Medicaid or military insurance. You may apply online by clicking … [Read more...]
FAQ’s: Mild Pulmonary Hypertension?
We receive many questions about the significance of an echocardiogram that shows mild “pulmonary hypertension”. When a cardiologist reads an echocardiogram, they often include the finding of pulmonary hypertension. The vast majority of the time this diagnosis has nothing to do with pulmonary arterial hypertension. There are several potential sources of error in using the … [Read more...]
FAQ’s: VQ Scans & PAH Curable?
Ventilation Perfusion Lung Scans Ventilation perfusion lung scans or VQ scans are an important test to evaluate for the possibility of chronic blood clots in your lungs. This test is generally not performed at local imaging centers (though in some larger towns they may be). Typically, this test is performed at regional hospitals. Over the past 20 years, this test is not … [Read more...]
