We are lucky to have some patient contributors to our website. I have known Donna and Patricia for many years. They have been very active in the local pulmonary hypertension community. They offer the following insight into the role of support groups.
By Patricia Harrington and Donna Green
The support of family and friends is a key element of coping with any complex medical problem. Patient education within support groups often helps the patient and family to understand their condition better. Information and connections within the support group often encourages new patients to further research their condition in order to make better choices about doctors, family support and treatment. The friendship and comradery found in the support group provides important support during good and bad times. The ability to help fellow patients with PAH is also an uplifting experience.
The Phoenix Pulmonary Hypertension Support Group has been a vital part of this rare disease community. Beginning Saturday, February 6, 2016, this group will meet on alternating months for the purpose of sharing experiences and furthering our knowledge and understanding of PAH. Lunch is provided and free to patients and caregivers. Come join the community! The first meeting for this year will be held at University of Arizona Medical Center (formerly Banner Good Samaritan Hospital) on Saturday, February 6, 2015, at 12noon (Hospital Provides Parking Shuttle).
For more information please visit us on Facebook at Inspire Pulmonary Media.