Second Opinions in Pulmonary Hypertension Care

We receive many questions about how and when to obtain a second opinion about pulmonary hypertension.  First, as a patient you should never feel insecure or like you are not being loyal or a good patient by seeking a second opinion. This is your health at stake.  Second, your doctor should not make you feel badly for seeking a second opinion. Be Your Own Advocate If you were … [Read more...]

My PAH Comprehensive Care Center Is Too Far Away

PAH Comprehensive Care Centers are a great place to get care for pulmonary arterial hypertension for several reasons. They have providers specially trained in PAH and other advanced lung diseases, they offer research studies to advance the understanding and treatment options for pulmonary arterial hypertension and they have dedicated nurses to help support their goal of … [Read more...]

Massachusetts – First State to Create PAH Task Force

  The first PAH State Task Force has been created in Massachusetts. The purpose of the force is to monitor and report annually on advances in research, lung transplantation, public awareness, health care delivery and improvements in early and accurate diagnosis all of which will affect how health care professionals provide care for patients with Pulmonary Arterial … [Read more...]

2017 PAH Comprehensive Care Center Update

Since 2014 the Pulmonary Hypertension Association has been working to provide a more useful directory of PAH experts. Prior to this time physicians were listed by request but were not vetted in any way. They simply filled out a survey and were on the site as a PAH expert. This system worked for many years when PAH was relatively unknown and very few treatments were available. … [Read more...]

Copay, Co-Insurance, Deductibles and Out of Pocket Maximum

Understanding the basic terminology of your health insurance is vitally important for patients with Pulmonary Hypertension.  As a consumer of health care you need to understand how the system works and the language the insurance company uses to describe their coverage. Deductible A deductible is the amount of money that the patient must pay before their insurance begins to … [Read more...]