Massachusetts – First State to Create PAH Task Force

  The first PAH State Task Force has been created in Massachusetts. The purpose of the force is to monitor and report annually on advances in research, lung transplantation, public awareness, health care delivery and improvements in early and accurate diagnosis all of which will affect how health care professionals provide care for patients with Pulmonary Arterial … [Read more...]

2017 PAH Comprehensive Care Center Update

Since 2014 the Pulmonary Hypertension Association has been working to provide a more useful directory of PAH experts. Prior to this time physicians were listed by request but were not vetted in any way. They simply filled out a survey and were on the site as a PAH expert. This system worked for many years when PAH was relatively unknown and very few treatments were available. … [Read more...]

Copay, Co-Insurance, Deductibles and Out of Pocket Maximum

Understanding the basic terminology of your health insurance is vitally important for patients with Pulmonary Hypertension.  As a consumer of health care you need to understand how the system works and the language the insurance company uses to describe their coverage. Deductible A deductible is the amount of money that the patient must pay before their insurance begins to … [Read more...]

Will the Real Pulmonary Hypertension Specialists Please Stand Up?

I was recently cruising the Internet looking to see what type of search results I would obtain when I put in the term “pulmonary hypertension specialist in Phoenix”.  I was somewhat mortified.  Every healthcare system in town had a webpage purporting to have a specialized program replete with a range of experts well versed in all aspects of pulmonary hypertension care.  I … [Read more...]

Preoperative Checklist for Pulmonary Hypertension Patients

Having a surgical procedure is always stressful.  Having Pulmonary Arterial Hypertension and needing a surgery is even more stressful.  Over the years, centers of excellence in PAH care have figured out ways to minimize the risk.  Below I outline some of the important areas to consider when planning for a surgery or invasive procedure. 1.      Is the procedure necessary? The … [Read more...]