Minimally Elevated Pulmonary Pressures

What Do They Mean? Mild PAH? We receive many emails from our readers inquiring whether having borderline to minimally elevated echo estimated pulmonary artery pressures means that they have pulmonary arterial hypertension.  This is a very important question and many doctors unfortunately don’t understand the limits of echocardiography so patients are often left more … [Read more...]

PAH Patient Assistance in 2018

2017 is now behind us.  As 2018 begins there are some major changes in the landscape for patient assistance.  For many years Caring Voices Coalition has been a leader in assisting patients with their expensive medications.  However, this chapter is closing and we do not expect Caring Voices to participate in patient assistance going forward.  This has left many Pulmonary … [Read more...]

Preventative Testing Important for PAH Patients

Many patients with PAH become very focused on caring for that specific disease, and rightly so. After all, we ask that pulmonary hypertension patients become well versed in their disease and treatments and help educate other providers on this rare disease. Sometimes providers also become hyper-focused while treating PAH patients and put preventative testing on the back burner.  … [Read more...]

Hereditary Hemorrhagic Telangiectasia (HHT) Treatment

  Nose bleeding The first step in treating a nose bleed is applying pressure.  You should lean forward slightly and pinch your nose with firm pressure.  Don’t let go for ten minutes.  When you let go, don’t try and blow your nose and avoid packing your nose with tissue paper.  When you blow your nose, you will displace the clot that has stopped the bleeding. Similarly, when … [Read more...]

Hereditary Hemorrhagic Telangiectasia (HHT)

Disease Overview HHT is a rare disease that leads to abnormal blood vessel growth throughout the body.  This commonly leads to frequent nose bleeds (epistaxis), gastro-intestinal bleeding and anemia.  The more serious manifestations include abnormal blood vessels in the lungs, brain and liver.  These abnormal blood vessels can lead to infections in the brain, bleeding in the … [Read more...]