Update on the Implantable System for Remodulin

On December 22, 2017, after eight years of study, the FDA has finally granted pre-market approval (PMA) to the fully implantable system for Remodulin.  This groundbreaking pump and catheter system allows patients to benefit from Remodulin while minimizing the inconvenience and risks associated with having an external intravenous catheter. However, this does not mean that the … [Read more...]

Financial Assistance for Pulmonary Hypertension Patients with Medicare, Medicaid & Military Benefits

  Assistance Now Available. Where to get financial assistance for the very expensive drugs used to treat Pulmonary Arterial Hypertension remains a hot topic. With an average treatment cost of around $100,000 per PAH patient per year, financial assistance is in great demand. Pulmonary Hypertension patients that are uninsured or privately insured have options for financial … [Read more...]

Stimulant Associated Pulmonary Arterial Hypertension

Diet Pills and Methamphetamines Stimulants were first suspected of causing pulmonary hypertension in the late 1960’s and early 1970’s.  In Austria a diet pilled called Aminorex was marketed in the late 1960’s and shortly thereafter an epidemic of pulmonary arterial hypertension developed among users.  The pill was withdrawn in the early 1970’s and the wave of Aminorex … [Read more...]

Minimally Elevated Pulmonary Pressures

What Do They Mean? Mild PAH? We receive many emails from our readers inquiring whether having borderline to minimally elevated echo estimated pulmonary artery pressures means that they have pulmonary arterial hypertension.  This is a very important question and many doctors unfortunately don’t understand the limits of echocardiography so patients are often left more … [Read more...]

PAH Patient Assistance in 2018

2017 is now behind us.  As 2018 begins there are some major changes in the landscape for patient assistance.  For many years Caring Voices Coalition has been a leader in assisting patients with their expensive medications.  However, this chapter is closing and we do not expect Caring Voices to participate in patient assistance going forward.  This has left many Pulmonary … [Read more...]