FAQ’s: PAH Experts, Pregnancy, Mild PAH, Vacationing & PAH

Your Questions Answered We continue to have many readers asking us questions as to where to find PAH experts.  We have written extensively on this issue.  I will summarize below. 1.      Comprehensive Care Centers and Regional Care Centers 2.     Doctors participating in clinical trials for PAH tend to be more expert and have more interest in the disease.  Visit … [Read more...]

Let Your Voice Be Heard

Pulmonary Hypertension Patients Take Note! The pulmonary hypertension community should raise their voices and make noise.  We stand at the brink of a dangerous time.  The federal government is seeking to change the health care system that has allowed the greatest advances in the care of PAH in the last 50 years. We are not advocating for any particular political party or even … [Read more...]

2017 PAH Comprehensive Care Center Update

Since 2014 the Pulmonary Hypertension Association has been working to provide a more useful directory of PAH experts. Prior to this time physicians were listed by request but were not vetted in any way. They simply filled out a survey and were on the site as a PAH expert. This system worked for many years when PAH was relatively unknown and very few treatments were available. … [Read more...]

FAQ’s: Causes of Pulmonary Hypertension, Symptom Frequency & Care Centers

Your Questions Answered Causes of Pulmonary Hypertension We received a variety of questions about the causes of pulmonary hypertension.  I will provide a short refresher and link to a more detailed discussion. Pulmonary hypertension means elevated pressures within the pulmonary arteries.  There are many different causes of this.  Experts divide the work of pulmonary … [Read more...]

3 New Year’s Resolutions for PAH Patients

The streamers have fallen and the ball has dropped. 2017 is off to a fast start. The beginning of a new year is a great time to try something new or start healthier habits.  Below are 3 resolutions to make the PAH community happier and healthier. 1.     Get Involved The PAH community is an amazing group of committed and devoted patients, caregivers and supporters. Not only … [Read more...]