Update on the Implanted Remodulin Pump

This week we learned that the much-awaited arrival of the Implanted Pump System for Remodulin would be further delayed.  The FDA did not grant Medtronic and United Therapeutics approval.  Details are scant but the announcement indicated that the device might be approved in the beginning of 2018. PAH Patients and doctors alike were let down by the delay.  The delay does not … [Read more...]

It’s Summer Time…and You Have PAH: 4 Tips For a Successful Summer

As Spring Break time of the year is coming to an end we are reminded that summer is fast approaching. Summer is generally considered a time to let loose, have fun, and relax. It can be difficult for anyone to stay focused on their health goals during the long days of summer due to vacations, holidays, and festivals. Below are a few tips to help PAH patients stay healthy this … [Read more...]

FAQ’s: PAH Experts, Pregnancy, Mild PAH, Vacationing & PAH

Your Questions Answered We continue to have many readers asking us questions as to where to find PAH experts.  We have written extensively on this issue.  I will summarize below. 1.      Comprehensive Care Centers and Regional Care Centers 2.     Doctors participating in clinical trials for PAH tend to be more expert and have more interest in the disease.  Visit … [Read more...]

Let Your Voice Be Heard

Pulmonary Hypertension Patients Take Note! The pulmonary hypertension community should raise their voices and make noise.  We stand at the brink of a dangerous time.  The federal government is seeking to change the health care system that has allowed the greatest advances in the care of PAH in the last 50 years. We are not advocating for any particular political party or even … [Read more...]

2017 PAH Comprehensive Care Center Update

Since 2014 the Pulmonary Hypertension Association has been working to provide a more useful directory of PAH experts. Prior to this time physicians were listed by request but were not vetted in any way. They simply filled out a survey and were on the site as a PAH expert. This system worked for many years when PAH was relatively unknown and very few treatments were available. … [Read more...]